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Katie's avatar

I must have missed this one the first time around. I'm moved by your phrase "inhabiting the fringes of disability", as it gives words to exactly where we are in with a family member. It's been a slow drift from injury, illness, lifestyle choices into a place that is likely to require daily assistance and mobility-friendly access for the rest of their life (hopefully still decades). I have fresh eyes for the ways in which these considerations and accommodations are essential for someone who *hasn't yet embraced the label or identity* of living with a disability. And yes, when a built environment already includes physical accessibility, what a gift that is. Otherwise, that fresh, sharp, psychological experience of limitation kicks in every time a person has to newly figure out how to get where they need or want to go. I think sometimes our society unconsciously defines "disability" as a permanent, life-long aspect of a person-- being born blind or deaf, or using a wheelchair for cerebral palsy. But here on the fringes of disability, it's obvious in hindsight that so many people *arrive* at a disability through illness, injury, or aging. And they don't have any prior practice with the logistical toll it takes to maneuver, much less the relational toll (perceived or real) in acknowledging vulnerability and seeking and accepting help for things they used to be able to manage.

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Erin's avatar

I keep meaning to mention this on these threads, but a still-practising architect friend of mine and I have had some interesting Twitter back-and-forths about what the world would look like if you designed for strollers (the specific example was buses), and we came to the conclusion that stroller access and wheelchair access are, in fact, very similar, and (like in the classic example of curb cuts) if you design for one, the other will inevitably benefit.

However, the great Catch-22 of disability/accessibility design is that some needs are mutually conflicting -- and that's where the policy lines get really, really fuzzy. Whose needs do you prioritise? How do you make egalitarian accommodations?

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