"If it's hard for everyone, I don't deserve help"
The kind of commiseration that leaves you drowning
This Thursday, I’ll share highlights from your reflections on the pressure to both do domestic work, and then, on top of that, to make the work invisible. This week, our topic is the kind of “support” that can leave you feeling like you don’t deserve help.
I like to read the Diagnosis column in the New York Times Magazine—a brief, two-page medical mystery adapted from a real person’s story. The author, Dr. Lisa Sanders, consulted for the tv show House, but the stories are stripped of the doctors’ personal drama and are centered more on the patient.
To make a diagnosis, the doctors have to be attentive to the patient, not just their lab results—nothing winds up in the column when the answer is deduced simply. This week’s column is suspenseful: in only a few hours, a young man who walks into an ER with chest pain after inhaling a breath mint is in such a poor state that it’s unclear if he’ll survive transfer to a more specialized hospital. (He makes it!)
But the part that stood out was his reflection after his diagnosis and recovery:
Once the patient understood what he had and started to feel the benefit of the treatment, he realized he’d been sick long before that mint went down wrong. He will have to take these hormones for the rest of his life, but he feels better than he has for years. No one can be certain exactly when his glands were destroyed; it was probably long ago. “I’m not a guy who goes to the doctor,” he admitted. He thought he was just getting old: “You know what they say — after 30, it’s all downhill.” But not anymore. Not for him, anyway.
Whenever I find out a friend is pregnant, I try to find a moment before her third trimester to have the postpartum depression talk. It goes something like this:
Having a newborn is hard, and you may feel pretty exhausted. And people are going to say things like, “You must be having a rough time! Not sleeping at all, right?” that will make it seem like suffering is normal and there’s no alternative.
And it is going to be hard, but I want you to know that not all kinds of hard are normal or inevitable. If you feel like you don’t deserve to sleep, if you’re afraid you’ll hurt your baby, if it feels like things will never get better or you have nothing to look forward to… that’s not the kind of hard people are telling you to expect.
You don’t have to just endure it, you’re not going to be a bad mom for wanting to feel better, it’s not the price you pay to get to have a baby. It might be depression, and a doctor can help you out… as long as someone knows you need help.
There’s a dangerous undertow when you’re surrounded by people commiserating about how hard you must have it. It can quash your sense that, no, this is different, something is really wrong and I need and deserve help.
You don’t have to have postpartum depression or anxiety to be misled by this well-meaning ruefulness. One friend of mine talked casually about how hard it was to get her baby to sleep, and I was light and sympathetic, until I heard the details of how hard she had it.
Her baby was only willing to sleep while held, never in a bassinet, so she and her husband had to take turns sitting awake and holding their little girl. It wasn’t until she said something about being impressed about how I got through that phase that I understood and said, “I never had that phase. That’s not a problem everyone has to deal with. What you have is way way harder that what I dealt with, and it’s worth seeing if someone can help get your baby closer to normal hard.”
I’ve had this kind of conversation with a friend who was working hard on being patient and coping with his stressful job. It was worse, because so many people in his office had a terrible time, and it was leaching everyone’s hope that something better was possible. You had to be working somewhere else to be able to say:
Lots of people don’t start the work day crying in their car.
When people say that their boss is a pain, they don’t mean that they are harangued for hours in a taped meeting… that other members of the team have to watch.
I’ve never held a job, at a variety of companies, where it was unremarkable for someone to throw up from stress every day.
He left, thanks be to God, but it took much longer than it could have, because he kept hearing that it was normal for your job to make you miserable, and he didn’t realize what a different level of misery most of the rest of us were talking about.
The man in the Diagnosis column was so used to hearing that getting older meant that your body fell apart that he accepted every pain and constraint as normal, unescapable, and unworthy of complaint. After all, everyone was going through the same thing.
He was wrong. My friend with the terrible job was wrong. My friend with the non-sleeping baby was wrong. But they all took their cues from the rest of us.
We experienced a very significant trauma seven years ago. It often stuns people when they hear the story. There was so much pressure around that time…we had five children, including a newborn, and found ourselves facing a mountain of trauma and stress that is rather exceptional. I mean, I think it is? It was confusing even in the early years. I desperately needed a kind soul to see me. I could have used the sense of validation that comes when a person sees your pain and offers their tears and their ears. What we received, however, was often this weird avoidance or a gush of encouragement for how we were weathering the storm. It felt like we were rarely seen though. Not really. Very few people are able to enter in to that level of pain. And the time it takes to process and heal? People don’t stick around for that. We were just a few days into this story and we already had close family members leaving on their planned vacations while we remained in the PICU with one child and my due date with another loomed. The dissonance of it all, of watching people both shrink away from it and/or make it seem like we were so brave and triumphant (even in the very beginning), created a frustrating vortex of isolation and loneliness.
A few years ago we asked for pastoral counseling. We were just so stressed out. Trauma impacts you on all levels. Simple things like the regular noises of raising a family become major stressors. Legos rattling? Stainless steel snack bowls clanging? Shrieks and loud play? It can be hard, right? Parenting is hard. But when you’re experiencing all these normal things while your body is doing a darn good job keeping the score…it’s a next level hard.
So we attempted to unpack it all to this pastor and we told him about our stressors. Finances, extended family, the way even normal things felt very hard, how we feel so tender and raw even years into this journey. I think we hoped for validation? Maybe we hoped for intentional pastoral care? I don’t know. It just seemed like the right thing to do. So we poured out our grief to this pastor.
I think his response sort of shocked us. He compared us to other couples that he counsels and said we were doing so well. I believe he genuinely wanted to encourage us but when he left that night I remember feeling very confused. Am I supposed to be encouraged? What do we have to do to get people to understand that we’re hurting? Still. We’re still hurting.
I weary of the comparison game and often would have loved for the gift of a friend sharing THEIR struggles because I needed to know they had them too. But I also, perhaps, needed to hear the simple validation of the intensity of what my family has experienced. We needed the Church to recognize the impact of trauma and not offer us empty words but real help.
We have also needed presence. The impact of a person saying, “I’m here. I’m not going anywhere. I’m with you. This is really intense. It makes me uncomfortable but I know you feel the discomfort in a deeper and more profound way so I won’t be put off by it. I’ll enter in and sit beside you. I see you.”
Anyway, I love this discussion and always appreciate the perspectives offered in this space.
This reminds me a lot of realizing (as an adult) that I have ADHD. People always said things like “studying is hard” or “staying focused is difficult” and I didn’t realize that what they meant by hard and what I was experiencing were not the same. I have since been able to improve my coping mechanisms and now that I’m done with school I have a lot more freedom to arrange my life in a way likely to lead to success. If I had known sooner that my experience wasn’t normal I might have been able to do a lot of this sooner.