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Julia Smucker's avatar

Thank you for writing about this. I have a friend on SSI who can't work outside the home but is probably the hardest worker I know. Once when she was at risk of going over the asset limit, she was told to spend money on going out to eat or to the movies - nothing keepable that would count as an asset - in order to keep the health insurance that she relies on. And of course, with the chronic health condition that she needs SSI for, there's no way that $2,000 and change would cover her health care needs without insurance. It absolutely is a poverty trap.

Eliminating the savings penalty seems like such an obvious and long-overdue solution; not that it's all that's needed, but it would be a huge step in the right direction: allowing a pathway out of poverty though savings, reducing reliance on public benefits, and as you point out here, making some badly-needed room for communities of care.

It's long past time to stop punishing people both for the individual hard work that our culture claims to value so much, and for the unavoidable and socially enriching interdependence that our culture too often undervalues.

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swangeese's avatar

I really appreciate this article. I'm on SSI and you do feel like you have to take a vow of extreme poverty in exchange for meager, but needed, benefits. The resource limits really do need to be increased and it would be a major win for the quality of life for disabled people. Currently there are a variety of convoluted ways to avoid this trap which just add an unnecessary layer of complexity. Or you may not qualify due to the particulars of your disability and/or SSA for a particular type of account. Often times it's just easier to eschew these schemes altogether for the simplicity of mandatory income reporting.

It's sad that I watched a documentary about SSI and disability in marriage not too long ago that was made in the 1990s. Nothing has changed since then. It really does need to change.

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