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Melanie Bettinelli's avatar

I’ve been reading Brisbane by Eugene Vodolazkin, which is a contemporary novel about a Ukrainian/Russian musician who is losing his ability to play due to Parkinson’s. I’m not done with the novel yet, but as I near the end he’s putting on a concert with a girl who is dying from liver failure and the beauty of them both coming together in this struggle to make music despot their illness is absolutely heartbreakingly gorgeous.

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Sophia's avatar

I'm always, always going to recommend Heather Lanier's Raising A Rare Girl for anything even remotely related to this. It truly drives home what it means to live as if you believe human life is infinitely valuable without any regard for its usefulness.

In my own life, I'm finally in a place where I can not only recognize my limitations but act on them. I'm starting to say no to things if I don't have the energy for them, which sometimes means that if I've worked my usual five or six days in the week, I can't go see friends on Saturday night, not if I want to have energy for church in the morning without having to "borrow" that energy from what I need to be ready to do well on Monday, starting off the next week right. The limits of what I can do without wearing myself out haven't moved much: the change is not in myself, but that now they are becoming visible to other people. I am very fortunate to have good people around me who don't try to make me feel bad for taking care of myself, or shame me for being less outgoing than someone else, but I often catch myself berating me for being lazy or a weakling or not caring enough about the people who want me to do things with them.

A very unchosen gift --- both very unchosen and very much a gift, which sometimes I can recognize --- is that sometimes I have to let people help. I don't like being vulnerable to people or letting myself become indebted, or on a more superficial level, letting people see just how bad the state of my house has gotten when I let them in to help clean it, because I'm supposed to be a capable adult with her priorities straight, which means taking good care of my surroundings. But, as I've read in several places, if nobody ever needed help, nobody would ever /get/ to help anyone else, and would be prevented from doing good deeds that way. I'm making an occasion for the people around me to do noble things because of my inability to go to Walmart, or do the dishes this week, or whatever it might be.

Obviously because I'm still able to go to work most days every week, I'm a lot more able than a lot of other people, and that still often makes me wonder (though logically I know it's wrong) whether, because so many other people have it so much harder, I even deserve to ask for help for my petty troubles. There too I can be an opportunity for people to do a good thing by reminding me of the proper way of looking at things.

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