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CE's avatar

In the last 2 years I have suffered through: ovarian cysts, endometriosis surgery, fertility treatments, an HG pregnancy, preeclampsia, an emergency c-section, c-section incision dehiscence and evisceration, and now caring for my newborn has been complicated by her own medical issues. Feeling like my body is out of sync with my intellect and desires is something I’m very familiar with. I also wrestle with knowing where my limits are and how to work with what I have to do what I strictly need to do in terms of duty/obligation and the things I want to do to make me feel like myself (creative outlets or reading or time with friends). I don’t have any answers for me or for anyone else, but at some point figuring out that it’s unreasonable to be perpetually operating at peak performance was spiritually helpful because it made it clear to me that spending the times when I am sick fretting about all the things I think I should be doing is a temptation to resent suffering that is inevitable and unavoidable anyway (and consequently to be MORE miserable). And I think about the Agony in the Garden and Jesus’ human frailty and desire to escape suffering a lot.

Mary Ellen's avatar

I've really been mulling on this one as I've contemplated breast cancer treatment. I wrote a long piece about it here: https://slowprocessing.substack.com/p/what-is-freedom-for

I've gone through a couple of prophylactic drugs and they haven't gone well. I headed to the oncologist last week with these ponderings:

If I were my mother, diagnosed with leukemia at age 50, or Ben Sasse, given the awful news of stage 4 cancer, would I choose a different course? Probably. If the murky horizon offered only death or painful, constantly medicated life, perhaps I’d take the pain for some number of months to say goodbye and get my affairs in order. Honestly, I don’t know.

I’m with Catholicism on assisted suicide, but what of choosing less suffering and less longevity, not actively choosing death, but intentionally choosing a shorter, un-medicated life? I’ve consulted around to my personal circle of religious ethicists and it seems I’m under no obligation to endure daily suffering for possible better cancer outcomes but, of course, I try not to deal in rights and obligations, but rather gifts and sacrifices.

What I know clearly is that my life is not my own. By virtue of many choices my body and the implications of my health are shared with my husband Ben and the kids and my co-worker Meridith, to a lesser degree with the families we support at Lydia’s House, and at a mystical level with Christ and the Church. I no longer have such a thing as bodily autonomy, despite what the oncologist said. I’ve talked to Ben and Meridith. They agreed with me not to have the full mastectomy, not to continue tamoxifen or exemestene. But the worry is present; it’s not light when I bring up these questions.

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